tag:blogger.com,1999:blog-18863412531125901052024-02-06T21:05:17.284-08:00Monkey Crew MamaKeeping Kids HealthyMonkey Crew Against DIPGhttp://www.blogger.com/profile/02458808474318651223noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-1886341253112590105.post-46168414140046649852017-01-13T17:46:00.002-08:002017-01-13T17:46:59.951-08:00<h2 style="text-align: center;">
<span style="font-family: Trebuchet MS; font-size: x-large;">Canadian Federal Health Ministry Refuses to Answer D.I.P.G. Children and Families</span></h2>
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<span style="font-family: "Verdana",sans-serif; font-size: 12pt; line-height: 107%; margin: 0px;">Dear Petition Supporters,</span></div>
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<span style="font-family: "Verdana",sans-serif; font-size: 12pt; line-height: 107%; margin: 0px;">As many of you know, <b style="mso-bidi-font-weight: normal;">Petition
e-440: May 15<sup>th</sup> as National D.I.P.G. Awareness Day</b> was presented
to the House of Commons on October 31<sup>st</sup>, 2016. The Federal Health
Ministry posted a response to the petition on December 14<sup>th</sup>, 2016. </span></div>
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<span style="font-family: "Verdana",sans-serif; font-size: 12pt; line-height: 107%; margin: 0px;">Unfortunately, it was an <i style="mso-bidi-font-style: normal;">incomplete</i> response that did <i style="mso-bidi-font-style: normal;">not
</i>give an answer to our petition request: “We, the undersigned, <b>Citizens
of Canada</b>, call upon the <b>House of Commons in Parliament assembled </b>to
declare May 15th as National D.I.P.G. Awareness Day across Canada”</span></div>
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<span style="font-family: "Verdana",sans-serif; font-size: 12pt; line-height: 107%; margin: 0px;">The Federal Health Ministry’s response can be
found here:</span></div>
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<span style="font-family: "Verdana",sans-serif; font-size: 12pt; line-height: 107%; margin: 0px;"><a href="http://www.parl.gc.ca/Content/HOC/ePetitions/Responses/421/e-440/421-00841_HC_E.pdf"><span style="color: #0563c1;">http://www.parl.gc.ca/Content/HOC/ePetitions/Responses/421/e-440/421-00841_HC_E.pdf</span></a>
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<span style="font-family: "Verdana",sans-serif; font-size: 12pt; line-height: 107%; margin: 0px;">There are several problems with their response: </span></div>
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<span style="font-family: "Verdana",sans-serif; font-size: 12pt; line-height: 107%; margin: 0px;"><span style="margin: 0px;">(1)<span style="font-size-adjust: none; font-stretch: normal; font: 7pt "Times New Roman"; margin: 0px;">
</span></span></span><span style="font-family: "Verdana",sans-serif; font-size: 12pt; line-height: 107%; margin: 0px;">They did not answer the petition. There was
no “yes” or “no” regarding whether they will declare a D.I.P.G. Awareness Day across
Canada which was the <i style="mso-bidi-font-style: normal;">only</i> request of
the petition. They simply did NOT answer the petition. After making a
complaint, I was instructed that I need to contact the Health Ministry directly
or my elected Member of Parliament.</span></div>
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<span style="font-family: "Verdana",sans-serif; font-size: 12pt; line-height: 107%; margin: 0px;"><span style="margin: 0px;">(2)<span style="font-size-adjust: none; font-stretch: normal; font: 7pt "Times New Roman"; margin: 0px;">
</span></span></span><span style="font-family: "Verdana",sans-serif; font-size: 12pt; line-height: 107%; margin: 0px;">It included cancer research funding fact: out
of $825 million only $29 million went to pediatric cancer research in general (only
3.5%) but failed to mention only 0.09% went to DIPG research.</span></div>
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<span style="font-family: "Verdana",sans-serif; font-size: 12pt; line-height: 107%; margin: 0px;"><span style="margin: 0px;">(3)<span style="font-size-adjust: none; font-stretch: normal; font: 7pt "Times New Roman"; margin: 0px;">
</span></span></span><span style="font-family: "Verdana",sans-serif; font-size: 12pt; line-height: 107%; margin: 0px;">There will be only $100, 000 invested in DIPG
research this year by the CIHR--how can we find a cure for the most vicious brain tumour with hardly any funding??</span></div>
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<span style="font-family: "Verdana",sans-serif; font-size: 12pt; line-height: 107%; margin: 0px;"><span style="margin: 0px;">(4)<span style="font-size-adjust: none; font-stretch: normal; font: 7pt "Times New Roman"; margin: 0px;">
</span></span></span><span style="font-family: "Verdana",sans-serif; font-size: 12pt; line-height: 107%; margin: 0px;">It quoted the $11.7 million <i style="mso-bidi-font-style: normal;">Stand Up 2 Cancer</i> will be investing in brain
tumour research over the next four years: “</span><span lang="EN" style="font-family: "Verdana",sans-serif; font-size: 12pt; line-height: 107%; margin: 0px;">The team will focus on glioblastomas in adults and
children and on posterior fossa ependymomas of infants.” Glioblastoma cells
have been used for over 50 years in DIPG research and have yielded <i style="mso-bidi-font-style: normal;">NO POSITIVE RESULTS</i>---this amazing Dream
Team will <u>NOT</u> be researching DIPG nor has glioblastoma research
translated into any viable treatment options or a cure for DIPG so it has no relevance to this petition. <span style="margin: 0px;"> </span></span><span style="font-family: "Verdana",sans-serif; font-size: 12pt; line-height: 107%; margin: 0px;"><a href="http://www.standup2cancer.ca/en/press_releases/su2c_canada_announces_new_cancer_stem_cell_dream_team_to_attack_brain_cance"><span style="color: #0563c1;">http://www.standup2cancer.ca/en/press_releases/su2c_canada_announces_new_cancer_stem_cell_dream_team_to_attack_brain_cance</span></a>
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<span style="font-family: "Verdana",sans-serif; font-size: 12pt; line-height: 107%; margin: 0px;">To say that we are heartbroken over the Canadian Health
Ministry’s lack of interest in DIPG brain tumour awareness is an
understatement. In previous dialogue with Health Minister Philpott, she indicated that
it was the lack of researcher interest in DIPG brain tumours that was to blame
for the minimal funding and progress. </span></div>
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<span style="font-family: "Verdana",sans-serif; font-size: 12pt; line-height: 107%; margin: 0px;">However, when given a COST-FREE
opportunity to help raise awareness, the Health Ministry would not even give an
answer. Once again, D.I.P.G. children and families have been ignored and pushed
aside for those health issues that bring the health ministry more media coverage. </span></div>
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<span style="font-family: "Verdana",sans-serif; font-size: 12pt; line-height: 107%; margin: 0px;">Please join our continued fight and write the Federal
Health Ministry to request that they <i style="mso-bidi-font-style: normal;">answer</i>
petition e-440: May 15<sup>th</sup> as D.I.P.G. Awareness Day across Canada, and that they answer YES:</span></div>
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<b><span style="font-family: "Verdana",sans-serif; font-size: 12pt; line-height: 107%; margin: 0px;">jane.philpott@canada.ca </span></b><span style="font-family: "Verdana",sans-serif; font-size: 12pt; line-height: 107%; margin: 0px;"><br />
<b><br />
Minister_ministre@hc-sc.gc.ca</b></span></div>
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<span style="font-family: "Verdana",sans-serif; font-size: 12pt; line-height: 107%; margin: 0px;">Remind her that D.I.P.G. children are on borrowed time...</span></div>
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<b></b><i></i><u></u><sub></sub><sup></sup><strike><br /></strike></div>
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Monkey Crew Against DIPGhttp://www.blogger.com/profile/02458808474318651223noreply@blogger.com0tag:blogger.com,1999:blog-1886341253112590105.post-18631713121908144912016-12-20T15:41:00.001-08:002016-12-20T15:44:24.919-08:00<h2 style="text-align: center;">
<span style="color: red; font-size: x-large;"><u>12 Days of Monkey Crew Christmas</u></span></h2>
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<span style="color: red;"></span><span style="font-family: "verdana" , sans-serif; font-size: large;">The Monkey Crew would like to share some Merry Christmas Cheer with you this holiday season. Sevanah's best buddy, Piper, has recorded a special Christmas song for the occasion. Hope you enjoy it!</span><span style="font-family: "verdana" , sans-serif;"> </span></div>
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<iframe allowfullscreen='allowfullscreen' webkitallowfullscreen='webkitallowfullscreen' mozallowfullscreen='mozallowfullscreen' width='320' height='266' src='https://www.blogger.com/video.g?token=AD6v5dwbINQhTfxHHOIQfeoilxKUR94ZwmRcKdqBhsoG8hr7W6H3nmuwiCFhdRPz3UF1nOhI8uVbyfJI7ifDBcoPdA' class='b-hbp-video b-uploaded' frameborder='0'></iframe></div>
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<span style="font-family: "verdana"; font-size: large;">If you want to sing along, here are the words:</span></div>
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</span><br />
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<span style="font-family: "verdana";"><span style="font-size: 14pt; margin: 0px;">On the <b style="mso-bidi-font-weight: normal;">first</b> day of Christmas, Monkey Crew
gave to me</span></span></div>
<span style="font-family: "verdana";">
<div style="margin: 0px;">
<span style="font-size: 14pt; margin: 0px;">A cure for DIPG.</span></div>
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<br /></div>
<div style="margin: 0px;">
<span style="font-size: 14pt; margin: 0px;">On the <b style="mso-bidi-font-weight: normal;">second</b> day of Christmas, Monkey Crew
gave to me </span></div>
<div style="margin: 0px;">
<span style="font-size: 14pt; margin: 0px;">Two boxing gloves</span></div>
<div style="margin: 0px;">
<span style="font-size: 14pt; margin: 0px;">And a cure for DIPG.</span></div>
<div style="margin: 0px;">
<br /></div>
<div style="margin: 0px;">
<span style="font-size: 14pt; margin: 0px;">On the <b style="mso-bidi-font-weight: normal;">third</b> day of Christmas, Monkey Crew
gave to me</span></div>
<div style="margin: 0px;">
<span style="font-size: 14pt; margin: 0px;">Three spy pens, two boxing
gloves</span></div>
<div style="margin: 0px;">
<span style="font-size: 14pt; margin: 0px;">And a cure for DIPG.</span></div>
<div style="margin: 0px;">
<br /></div>
<div style="margin: 0px;">
<span style="font-size: 14pt; margin: 0px;">On the <b style="mso-bidi-font-weight: normal;">fourth</b> day of Christmas, Monkey Crew
gave to me</span></div>
<div style="margin: 0px;">
<span style="font-size: 14pt; margin: 0px;">Four whirly birds, three
spy pens, two boxing gloves</span></div>
<div style="margin: 0px;">
<span style="font-size: 14pt; margin: 0px;">And a cure for DIPG.</span></div>
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<br /></div>
<div style="margin: 0px;">
<span style="font-size: 14pt; margin: 0px;">On the <b style="mso-bidi-font-weight: normal;">fifth</b> day of Christmas, Monkey Crew
gave to me</span></div>
<div style="margin: 0px;">
<span style="font-size: 14pt; margin: 0px;">Five snow-mo-biles, four
whirly birds, three spy pens, two boxing gloves</span></div>
<div style="margin: 0px;">
<span style="font-size: 14pt; margin: 0px;">And a cure for DIPG.</span></div>
<div style="margin: 0px;">
<br /></div>
<div style="margin: 0px;">
<span style="font-size: 14pt; margin: 0px;">On the <b style="mso-bidi-font-weight: normal;">sixth</b> day of Christmas, Monkey Crew
gave to me</span></div>
<div style="margin: 0px;">
<span style="font-size: 14pt; margin: 0px;">Six police a-following,
five snow-mo-biles, four whirly birds, three spy pens, two boxing gloves</span></div>
<div style="margin: 0px;">
<span style="font-size: 14pt; margin: 0px;">And a cure for DIPG.</span></div>
<div style="margin: 0px;">
<br /></div>
<div style="margin: 0px;">
<span style="font-size: 14pt; margin: 0px;">On the <b style="mso-bidi-font-weight: normal;">seventh</b> day of Christmas, Monkey Crew
gave to me</span></div>
<div style="margin: 0px;">
<span style="font-size: 14pt; margin: 0px;">Seven picks for mining,
six police a-following, five snow-mo-biles, four whirly birds, three spy pens,
two boxing gloves</span></div>
<div style="margin: 0px;">
<span style="font-size: 14pt; margin: 0px;">And a cure for DIPG.</span></div>
<div style="margin: 0px;">
<br /></div>
<div style="margin: 0px;">
<span style="font-size: 14pt; margin: 0px;">On the <b style="mso-bidi-font-weight: normal;">eighth </b>day of Christmas, Monkey Crew
gave to me</span></div>
<div style="margin: 0px;">
<span style="font-size: 14pt; margin: 0px;">Eight vines for swinging,
seven picks for mining, six police a-following, five snow-mo-biles, four whirly
birds, three spy pens, two boxing gloves</span></div>
<div style="margin: 0px;">
<span style="font-size: 14pt; margin: 0px;">And a cure for DIPG.</span></div>
<div style="margin: 0px;">
<br /></div>
<div style="margin: 0px;">
<span style="font-size: 14pt; margin: 0px;">On the <b style="mso-bidi-font-weight: normal;">ninth</b> day of Christmas, Monkey Crew
gave to me</span></div>
<div style="margin: 0px;">
<span style="font-size: 14pt; margin: 0px;">Nine penguins prancing,
eight vines for swinging, seven picks for mining, six police a-following, five
snow-mo-biles, four whirly birds, three spy pens, two boxing gloves </span></div>
<div style="margin: 0px;">
<span style="font-size: 14pt; margin: 0px;">And a cure for DIPG.</span></div>
<div style="margin: 0px;">
<br /></div>
<div style="margin: 0px;">
<span style="font-size: 14pt; margin: 0px;">On the <b style="mso-bidi-font-weight: normal;">tenth</b> day of Christmas, Monkey Crew
gave to me</span></div>
<div style="margin: 0px;">
<span style="font-size: 14pt; margin: 0px;">Ten horns a-beeping, nine
penguins prancing, eight vines for swinging, seven picks for mining, six police
a-following, five snow-mo-biles, four whirly birds, three spy pens, two boxing
gloves</span></div>
<div style="margin: 0px;">
<span style="font-size: 14pt; margin: 0px;">And a cure for DIPG.</span></div>
<div style="margin: 0px;">
<br /></div>
<div style="margin: 0px;">
<span style="font-size: 14pt; margin: 0px;">On the <b style="mso-bidi-font-weight: normal;">eleventh</b> day of Christmas, Monkey Crew
gave to me</span></div>
<div style="margin: 0px;">
<span style="font-size: 14pt; margin: 0px;">Eleven Pipers
piping----wait, what? Eleven Pipers?! Ten horns a-beeping, nine penguins
prancing, eight vines for swinging, seven picks for mining, six police-a
following, five snow-mo-biles, four whirly birds, three spy pens, two boxing
gloves</span></div>
<div style="margin: 0px;">
<span style="font-size: 14pt; margin: 0px;">And a cure for DIPG.</span></div>
<div style="margin: 0px;">
<br /></div>
<div style="margin: 0px;">
<span style="font-size: 14pt; margin: 0px;">On the <b style="mso-bidi-font-weight: normal;">twelfth</b> day of Christmas, Monkey Crew
gave to me</span></div>
<div style="margin: 0px;">
<span style="font-size: 14pt; margin: 0px;">Twelve engines revving,
eleven Pipers piping, ten horns a-beeping, nine penguins prancing, eight vines
for swinging, seven picks for mining, six police a-following, five
snow-mo-biles, four whirly birds, three spy pens, two boxing gloves</span></div>
<div style="margin: 0px;">
<span style="font-size: 14pt; margin: 0px;">And a cure for DIPG.</span></div>
</span></div>
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<span style="font-family: "verdana";"><br /></span></div>
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<span style="font-family: "verdana";"><br /></span></div>
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<span style="font-family: "verdana";">Written by Sevanah's Mama and Daddy for their Baby Boo. Christmas 2016.</span></div>
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Monkey Crew Against DIPGhttp://www.blogger.com/profile/02458808474318651223noreply@blogger.com0tag:blogger.com,1999:blog-1886341253112590105.post-29987100007113592442016-10-10T20:15:00.001-07:002016-11-14T12:03:56.835-08:00<h2 style="text-align: center;">
<span style="color: #0b5394;"><u><span style="font-size: x-large;">Petition e-440</span></u><span style="font-size: x-large;">: May 15th as National DIPG Awareness Day Across Canada</span></span></h2>
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<span style="color: black; font-family: "verdana" , sans-serif;"><a href="http://www.monkeycrewagainstdipg.com/"><span style="font-size: large;">Monkey Crew Against DIPG</span></a><span style="font-size: large;"> is asking that you take five minutes to copy and paste an email to Health Minister <a href="http://jphilpott.liberal.ca/">Jane Philpott</a> to let the Federal Health Ministry know that you have signed <a href="https://petitions.parl.gc.ca/en/Petition/Details?Petition=e-440">petition e-440</a> and why it is so important. </span></span></div>
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<span style="color: black; font-family: "verdana" , sans-serif;"><b><span style="font-size: large;">Petition e-440</span></b><span style="font-size: large;"> was <a href="http://www.parl.gc.ca/About/House/compendium/web-content/c_d_tablingdocuments-e.htm">tabled</a> in the House of Commons on October 31st by sponsor MP Stephen Fuhr. It was just recently brought to our attention that any decisions regarding the petition will be done by the Federal Health Ministry. As the petition has already been tabled, please send your email as soon as possible.</span></span><br />
<span style="font-family: "verdana"; font-size: large;"><br /></span>
<span style="color: black; font-family: "verdana" , sans-serif;"><span style="font-size: large;">All the emails to your local MPs are not wasted! They have helped us to raise awareness for D.I.P.G. brain cancer, generate interest by MPs all over Canada in D.I.P.G. brain tumour research initiatives, and given D.I.P.G. children and their families a louder voice.</span></span></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEibwUYAVSZpsmzCJkCbNSW28E18bMZ0cfZeBkbuv-HAd77VK50E2ebftKqWcFKULV5uH_fBKUDi6wHY-pwT_-rZr8SXJFXukUSQ9l6EInC6CNjeHLnwfnjJqdNrFRtK1-wtLjgGhl_rWug/s1600/11-canadian-flag-houses-of-parliament.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="291" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEibwUYAVSZpsmzCJkCbNSW28E18bMZ0cfZeBkbuv-HAd77VK50E2ebftKqWcFKULV5uH_fBKUDi6wHY-pwT_-rZr8SXJFXukUSQ9l6EInC6CNjeHLnwfnjJqdNrFRtK1-wtLjgGhl_rWug/s400/11-canadian-flag-houses-of-parliament.jpg" width="400" /></a></div>
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<h3>
<span style="font-family: "trebuchet ms" , sans-serif; font-size: large;">Find a link to a pdf template letter to help you with your email <a href="https://drive.google.com/file/d/0B4EwDXGm1bRQZFBfenpOUm1jRk0/view?usp=sharing">here</a>. Or copy and paste the template letter below into an email for Health Minister Jane Philpott. Remember to add your name to the bottom.</span></h3>
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<span style="color: black; font-family: "verdana";">
</span><br />
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<div style="margin: 0px 0px 11px;">
<span style="font-family: "verdana" , sans-serif; font-size: 12pt; line-height: 107%; margin: 0px;">Dear Honourable Jane Philpott,</span></div>
<br />
<div style="margin: 0px 0px 11px;">
<span style="font-family: "verdana" , sans-serif; font-size: 12pt; line-height: 107%; margin: 0px;">I am writing to bring your attention to petition <b style="mso-bidi-font-weight: normal;">e-440: May 15<sup>th</sup> as a National
D.I.P.G. Awareness Day,</b> which was tabled in the House of
Commons on October 31st. D.I.P.G. is a childhood brainstem tumour with a 0%
survival rate that receives little research funding and has had no advances in
treatment that extend survival time in over <i style="mso-bidi-font-style: normal;">50</i>
years. </span></div>
<br />
<div style="margin: 0px 0px 11px;">
<span style="font-family: "verdana" , sans-serif; font-size: 12pt; line-height: 107%; margin: 0px;">Brain cancer is now the leading cause of cancer deaths
amongst children and D.I.P.G. tumours account for 80% of these deaths yet many
people, including health care professionals, have never heard of D.I.P.G. Declaring
<b style="mso-bidi-font-weight: normal;">May 15<sup>th</sup> as National D.I.P.G.
Awareness Day</b> costs <i style="mso-bidi-font-style: normal;">nothing</i> yet
its reward is <i style="mso-bidi-font-style: normal;">far-reaching</i>. A
dedicated, annual DIPG awareness day:</span></div>
<br />
<div style="margin: 0px 0px 0px 48px; text-indent: -18pt;">
<span style="font-family: "verdana" , sans-serif; font-size: 12pt; line-height: 107%; margin: 0px;"><span style="margin: 0px;">1)<span style="font-size-adjust: none; font-stretch: normal; font: 7pt "Times New Roman"; margin: 0px;">
</span></span></span><span style="font-family: "verdana" , sans-serif; font-size: 12pt; line-height: 107%; margin: 0px;">Acknowledges the severity of D.I.P.G. and its
widespread impact on Canadian families, friends, and communities</span></div>
<br />
<div style="margin: 0px 0px 0px 48px; text-indent: -18pt;">
<span style="font-family: "verdana" , sans-serif; font-size: 12pt; line-height: 107%; margin: 0px;"><span style="margin: 0px;">2)<span style="font-size-adjust: none; font-stretch: normal; font: 7pt "Times New Roman"; margin: 0px;">
</span></span></span><span style="font-family: "verdana" , sans-serif; font-size: 12pt; line-height: 107%; margin: 0px;">Raises public awareness of D.I.P.G. brain
cancer</span></div>
<br />
<div style="margin: 0px 0px 0px 48px; text-indent: -18pt;">
<span style="font-family: "verdana" , sans-serif; font-size: 12pt; line-height: 107%; margin: 0px;"><span style="margin: 0px;">3)<span style="font-size-adjust: none; font-stretch: normal; font: 7pt "Times New Roman"; margin: 0px;">
</span></span></span><span style="font-family: "verdana" , sans-serif; font-size: 12pt; line-height: 107%; margin: 0px;">Gains researcher and practicing
professional’s attention which, in turn, increases D.I.P.G. research
initiatives and the likelihood of earlier detection</span></div>
<br />
<div style="margin: 0px 0px 0px 48px; text-indent: -18pt;">
<span style="font-family: "verdana" , sans-serif; font-size: 12pt; line-height: 107%; margin: 0px;"><span style="margin: 0px;">4)<span style="font-size-adjust: none; font-stretch: normal; font: 7pt "Times New Roman"; margin: 0px;">
</span></span></span><span style="font-family: "verdana" , sans-serif; font-size: 12pt; line-height: 107%; margin: 0px;">Opens the door for more dialogue about D.I.P.G.
detection, treatment and research between D.I.P.G. families, the public and the
medical community</span></div>
<br />
<div style="margin: 0px 0px 0px 48px; text-indent: -18pt;">
<span style="font-family: "verdana" , sans-serif; font-size: 12pt; line-height: 107%; margin: 0px;"><span style="margin: 0px;">5)<span style="font-size-adjust: none; font-stretch: normal; font: 7pt "Times New Roman"; margin: 0px;">
</span></span></span><span style="font-family: "verdana" , sans-serif; font-size: 12pt; line-height: 107%; margin: 0px;">Honours the fallen children who have died
from D.I.P.G. and the children who are still fighting</span></div>
<br />
<div style="margin: 0px 0px 11px 48px; text-indent: -18pt;">
<span style="font-family: "verdana" , sans-serif; font-size: 12pt; line-height: 107%; margin: 0px;"><span style="margin: 0px;">6)<span style="font-size-adjust: none; font-stretch: normal; font: 7pt "Times New Roman"; margin: 0px;">
</span></span></span><span style="font-family: "verdana" , sans-serif; font-size: 12pt; line-height: 107%; margin: 0px;">Is the first step towards getting dedicated,
annual D.I.P.G. research funding and early detection initiatives</span></div>
<br />
<div style="margin: 0px 0px 11px;">
<span style="font-family: "verdana" , sans-serif; font-size: 12pt; line-height: 107%; margin: 0px;">Supporting <b style="mso-bidi-font-weight: normal;">petition
e-440 </b>is an opportunity for you to correct a Canadian health tragedy that
has been devastating families, friends, peers, and communities all over Canada
for over 50 years. Diffuse Intrinsic Pontine Glioma (D.I.P.G.) is an
aggressive, inoperable brainstem tumour with a median survival time of only 9
months, and 90% of children diagnosed with DIPG will die within 2 years of
their diagnosis. Children remain mentally intact while they lose their ability
to see, walk, chew, swallow, talk, hear and breathe before their heart stops
beating. There is presently NO cure or viable treatment option available in
Canada that extend symptom-free survival time or overall survival time for
children suffering with D.I.P.G.</span></div>
<br />
<div style="margin: 0px 0px 11px;">
<span style="font-family: "verdana" , sans-serif; font-size: 12pt; line-height: 107%; margin: 0px;">I am asking that the Canadian Health Ministry support petition <b>e-440</b> and name<b> May 15</b><sup><b>th</b></sup><b> as National D.I.P.G. Awareness Day across
Canada</b>. </span></div>
<br />
<div style="margin: 0px 0px 11px;">
<span style="font-family: "verdana" , sans-serif; font-size: 12pt; line-height: 107%; margin: 0px;">Kind Regards,</span></div>
<br />
<div style="margin: 0px 0px 11px;">
<span style="color: #5b9bd5; font-family: "verdana" , sans-serif; font-size: 12pt; line-height: 107%; margin: 0px;">your name</span></div>
</div>
<span style="font-family: "verdana"; font-size: large;"></span><br />
<div style="margin: 0px 0px 11px;">
<span style="font-family: "verdana"; font-size: large;"><b>Send your email to both:</b></span><br />
<span style="font-family: "verdana"; font-size: large;"><b><br /></b></span>
<span style="font-family: "verdana"; font-size: large;"><b>jane.philpott@canada.ca </b></span><br />
<span style="font-family: "verdana"; font-size: large;"><b><br /></b></span>
<span style="font-family: "verdana"; font-size: large;"><b>Minister_ministre@hc-sc.gc.ca</b></span></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgyuKEBuInAam-Cb0SYhtiimtNlBo6qWvJc7DEG98UhcXcJIzc20jGZonsfUovlmiySgoqoGB8VkCQFF3BJujAoex5yBk7FI5qQxJANBK4P2_AqcuIEPVo8-3lJC7I4nuhx4WcC5_M2rCU/s1600/Flag_map_of_Greater_Canada.png" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="210" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgyuKEBuInAam-Cb0SYhtiimtNlBo6qWvJc7DEG98UhcXcJIzc20jGZonsfUovlmiySgoqoGB8VkCQFF3BJujAoex5yBk7FI5qQxJANBK4P2_AqcuIEPVo8-3lJC7I4nuhx4WcC5_M2rCU/s320/Flag_map_of_Greater_Canada.png" width="320" /></a></div>
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<span style="font-family: "trebuchet ms" , sans-serif;">"Together We Can Give These Children Hope for a Future"</span></h3>
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<h2 align="left" style="text-align: center;">
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Monkey Crew Against DIPGhttp://www.blogger.com/profile/02458808474318651223noreply@blogger.com0tag:blogger.com,1999:blog-1886341253112590105.post-82941146506611228032016-09-28T14:55:00.000-07:002016-09-28T14:55:27.630-07:00<h2>
<span style="font-family: "Trebuchet MS", sans-serif;"></span><span style="color: #0b5394; font-family: "Trebuchet MS", sans-serif; font-size: x-large;">Protect Your Peepers!</span></h2>
<h3>
<span style="color: #0b5394; font-family: "Trebuchet MS", sans-serif; font-size: large;"><u>Preschool Eye Exam Basics</u></span></h3>
<h4>
<span style="font-family: "Trebuchet MS", sans-serif;">Did you know that children between 2 and 5 years of age should have <i>at least one</i> </span><span style="font-family: "Trebuchet MS", sans-serif;">comprehensive eye exam</span><span style="font-family: "Trebuchet MS", sans-serif;">?</span> </h4>
<div>
<span style="font-family: Verdana, sans-serif;">It is recommended that preschool children have a <a href="http://monkeycrewmama.blogspot.ca/2016_08_01_archive.html">comprehensive eye exam</a> around three years of age and another eye exam <i>before</i> they start kindergarten. If your preschooler requires glasses or there is a family history of vision issues, it is recommended that they visit an optometrist annually. </span></div>
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<span style="font-family: verdana;"><br /></span></div>
<div>
<span style="font-family: Verdana, sans-serif;">Preschoolers are still fine-tuning their
visual skills and it is imperative that any vision issues be caught before they cause long-lasting damage to their vision or impede other areas of development. Eye exams are important at this age because children's development and learning are directly connected to the following skills associated with good eyesight:</span></div>
<ul>
<li><span style="font-family: verdana;">near vision</span></li>
<li><span style="font-family: verdana;">distance vision</span></li>
<li><span style="font-family: verdana;">binocular (two eyes) coordination</span></li>
<li><span style="font-family: verdana;">eye movement skills</span></li>
<li><span style="font-family: verdana;">focusing skills</span></li>
<li><span style="font-family: verdana;">peripheral awareness</span></li>
<li><span style="font-family: verdana;">hand-eye coordination</span></li>
</ul>
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<span style="color: #0b5394; font-family: "Trebuchet MS", sans-serif;"><u>What to Expect During the Exam</u></span></h3>
<span style="font-family: Verdana, sans-serif;">Come prepared to share your child's birth history, medical history and family history. Prepare your child beforehand by explaining that the optometrist will be looking at their eyes--never surprise them with a visit, give plenty of warning so they are comfortable having their eyes examined. Choose a time that works best for <i>your</i> child (ex. avoiding naptime or the end of a busy day) to provide the best opportunity for a successful visit. </span><br />
<span style="font-family: Verdana, sans-serif;"><br /></span>
<span style="font-family: Verdana, sans-serif;">Common Eye Tests Used for Young Children:</span><br />
<ul>
<li><span style="font-family: Verdana, sans-serif;"><b>LEA Symbols</b>: an eye chart for young children between 3 and 6 years of age who cannot yet read that uses symbols or shapes (ex. apple, house, square, circle) <div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhizuZWEJgS0I-4xeHd-kvdc4jPL2wSjpw_tYejRPX0MmNetbtH2TQduwaDVhXrTwtk_hEsrMnEAvX_Wccfp-6ZQk07RScf5OoMc8P67Re4sJ92tfCrnn1AnPz-j1GrxV9LnMSC1RhCILw/s1600/lea2.gif" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="185" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhizuZWEJgS0I-4xeHd-kvdc4jPL2wSjpw_tYejRPX0MmNetbtH2TQduwaDVhXrTwtk_hEsrMnEAvX_Wccfp-6ZQk07RScf5OoMc8P67Re4sJ92tfCrnn1AnPz-j1GrxV9LnMSC1RhCILw/s200/lea2.gif" width="200" /></a></div>
</span></li>
</ul>
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<span style="font-family: verdana;"><br /></span></div>
<ul>
<li><span style="font-family: verdana;"><a href="https://www.verywell.com/all-about-retinoscopy-eye-exam-3421840"><b>Retinoscopy</b></a>: a test that shines light into the child's eye to observe the reflection from the back of the eye (retina) which helps determine a child's eye glass prescription</span></li>
</ul>
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<span style="font-family: verdana;"><br /></span></div>
<ul>
<li><span style="font-family: verdana;"><b>Random dot stereopsis</b>: uses special patterns of dots and 3-D glasses to measure how well your child's eyes work together<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhWZlxl8kjlZM2Njw0Mau7jFmbSrC8-lReQfkKCyOM1OfcTwuCQuIb5ldesim7V_V0VDtWbKvTTnbXWN2Ojqew3EgY0AHH6Qicpn3KTwvDLdLBUWy2FLSJadtQ4T3ANeqKYnqAx8QyKF8k/s1600/random+dot.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhWZlxl8kjlZM2Njw0Mau7jFmbSrC8-lReQfkKCyOM1OfcTwuCQuIb5ldesim7V_V0VDtWbKvTTnbXWN2Ojqew3EgY0AHH6Qicpn3KTwvDLdLBUWy2FLSJadtQ4T3ANeqKYnqAx8QyKF8k/s1600/random+dot.jpg" /></a></div>
</span></li>
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<ul>
<li><span style="font-family: verdana;"><a href="http://www.allaboutvision.com/eye-test/"><b>Tumbling E Chart</b></a><b>: </b>all characters on the chart are a capital letter "E," in different spatial orientations (rotated in increments of 90 degrees) and the optometrists will ask the child to use either hand (with their fingers extended) to show which direction the "fingers" of the E are pointing: right, left, up or down<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiMDcyhackWFQBxiFgjeIrkTcITPkFFnCfv6WsVU07Dy22gVoIGs6wdgereTQmEt1L22jh1fxvh2oq-GViTGwg2e-Alx-fz9Y_1zw75N75CltjwwyFcc4xAm7CQPZBY5bNUfscB_7wOono/s1600/tumblingE.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiMDcyhackWFQBxiFgjeIrkTcITPkFFnCfv6WsVU07Dy22gVoIGs6wdgereTQmEt1L22jh1fxvh2oq-GViTGwg2e-Alx-fz9Y_1zw75N75CltjwwyFcc4xAm7CQPZBY5bNUfscB_7wOono/s200/tumblingE.jpg" width="123" /></a></div>
</span></li>
</ul>
<h3>
<span style="color: #0b5394; font-family: "Trebuchet MS", sans-serif;"><u>Warning Signs</u></span></h3>
<div>
<span style="font-family: Verdana, sans-serif;">If your Preschooler is struggling with any of the following symptoms, book a comprehensive eye exam as soon as possible:</span></div>
<div>
<ul>
<li><div style="margin: 0px 0px 11px;">
<span lang="EN" style="margin: 0px;"><span style="font-family: Verdana, sans-serif;">red, itchy or watering eyes</span></span></div>
</li>
<li><div style="margin: 0px 0px 11px;">
<span lang="EN" style="margin: 0px;"><span style="font-family: Verdana, sans-serif;">sensitivity to light</span></span></div>
</li>
<li><div style="margin: 0px 0px 11px;">
<span lang="EN" style="margin: 0px;"><span style="font-family: Verdana, sans-serif;">an eye that consistently turns in or out</span></span></div>
</li>
<li><div style="margin: 0px 0px 11px;">
<span lang="EN" style="margin: 0px;"><span style="font-family: Verdana, sans-serif;">tilting their head to see better</span></span></div>
</li>
<li><div style="margin: 0px 0px 11px;">
<span lang="EN" style="margin: 0px;"><span style="font-family: Verdana, sans-serif;">squinting, rubbing the eyes, or excessive blinking</span></span></div>
</li>
<li><div style="margin: 0px 0px 11px;">
<span lang="EN" style="margin: 0px;"><span style="font-family: Verdana, sans-serif;">a lack of concentration</span></span></div>
</li>
<li><div style="margin: 0px 0px 11px;">
<span lang="EN" style="margin: 0px;"><span style="font-family: Verdana, sans-serif;">covering or closing one eye</span></span></div>
</li>
<li><div style="margin: 0px 0px 11px;">
<span lang="EN" style="margin: 0px;"><span style="font-family: Verdana, sans-serif;">irritability or short attention span</span></span></div>
</li>
<li><div style="margin: 0px 0px 11px;">
<span lang="EN" style="margin: 0px;"><span style="font-family: Verdana, sans-serif;">holding objects too close</span></span></div>
</li>
<li><div style="margin: 0px 0px 11px;">
<span lang="EN" style="margin: 0px;"><span style="font-family: Verdana, sans-serif;">avoiding activities that require near vision, such as reading or coloring, or distance vision, such as playing ball or tag </span></span></div>
</li>
<li><div style="margin: 0px 0px 11px;">
<span lang="EN" style="margin: 0px;"><span style="font-family: Verdana, sans-serif;">visible frustration or grimacing</span></span></div>
</li>
<li><div style="margin: 0px 0px 11px;">
<span lang="EN" style="margin: 0px;"><span style="font-family: Verdana, sans-serif;">complaining of headaches or tired eyes</span></span></div>
</li>
</ul>
</div>
<h4>
<span style="font-family: "Trebuchet MS", sans-serif;"><a href="https://fyidoctors.com/en/blog/2016/jan/are-eye-exams-in-canada-covered-by-the-government/">FYiDoctors</a> provides information for each province regarding coverage for eye exams. BC MSP covers ONE full eye examination yearly for children birth to 18 years.</span></h4>
<h3>
<span style="font-family: "Trebuchet MS", sans-serif;"><br /></span></h3>
<h3>
<span style="font-family: "Trebuchet MS", sans-serif;">Resources</span></h3>
<div>
<span style="font-family: Verdana, sans-serif;"><a href="http://www.allaboutvision.com/parents/preschool.htm">All About Vision</a></span></div>
<div>
<span style="font-family: verdana;"><a href="https://opto.ca/health-library">Canadian Association of Optometrists</a></span></div>
<div>
<span style="font-family: verdana;"><a href="http://www.cps.ca/documents/position/children-vision-screening">Canadian Pediatric Society</a></span></div>
<div>
<span style="font-family: verdana;"><a href="http://doctorsofoptometry.ca/">Canadian Doctors of Optometry</a></span></div>
<div>
<span style="font-family: verdana;"><a href="http://www.eyeglassguide.com/my-visit/vision-testing/retinoscopy.aspx">Eye Glass Guide</a></span></div>
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Monkey Crew Against DIPGhttp://www.blogger.com/profile/02458808474318651223noreply@blogger.com0tag:blogger.com,1999:blog-1886341253112590105.post-17130054019244437342016-09-22T13:56:00.001-07:002016-09-27T16:25:12.846-07:00<h2>
<span style="color: #3d85c6; font-family: "trebuchet ms" , sans-serif; font-size: x-large;">
Protect Your Peepers!</span></h2>
<h3>
<span style="color: #3d85c6; font-family: "trebuchet ms" , sans-serif;"><u>
Infant Eye Exam Basics</u></span></h3>
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgslQj-hWfIA9ehGOovg7x-xpea9dPymYBP6bBXsCeax8NXRvxlzlta_u0eiRyn29qXLEiKi7JO2hv3LuiDP_RveiC90hVaWkUTRRpbLswG9u_MICqRBF0wS7dfQumNjZ3ekaAYSuAIqTo/s1600/baby.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="261" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgslQj-hWfIA9ehGOovg7x-xpea9dPymYBP6bBXsCeax8NXRvxlzlta_u0eiRyn29qXLEiKi7JO2hv3LuiDP_RveiC90hVaWkUTRRpbLswG9u_MICqRBF0wS7dfQumNjZ3ekaAYSuAIqTo/s400/baby.jpg" width="400" /></a></div>
<h3>
</h3>
<span style="font-family: "verdana" , sans-serif;"><b>Did you know infants should have their first comprehensive eye exam by 6 months?</b></span><br />
<br />
<div style="margin: 0px 0px 11px;">
<span style="font-family: "verdana" , sans-serif;">Why so young you ask? Vision development is a crucial part
of your baby’s overall development. It affects areas such as fine and gross motor skills, cognitive and language development and even your baby's emotional development. </span></div>
<div style="margin: 0px 0px 11px;">
<span style="font-family: "verdana" , sans-serif;">At six months, it is easier for an
Optometrist to assess your child’s development and determine if a vision issue may be
present because developmental milestones are more obvious during this stage of growth and learning. Early intervention at this age lessens damage that could lead to lifelong vision
issues.</span></div>
<br />
<h3 style="margin: 0px 0px 11px;">
Infant Eye Exams</h3>
<br />
<div style="margin: 0px 0px 11px;">
<span style="font-family: "verdana" , sans-serif;">During an infant eye exam an Optometrist will be checking
the health of your baby's eyes and looking for anything that might interfere
with normal and continuing vision development. This includes looking at:</span></div>
<br />
<ul>
<li><div style="margin: 0px 0px 11px;">
<span style="font-family: "verdana" , sans-serif;">Age appropriate Visual Acuity</span></div>
</li>
<li><div style="margin: 0px 0px 11px;">
<span style="font-family: "verdana" , sans-serif;">Refractive Status</span></div>
</li>
<li><div style="margin: 0px 0px 11px;">
<span style="font-family: "verdana" , sans-serif;">Eye Movement (eye motility) </span></div>
</li>
<li><div style="margin: 0px 0px 11px;">
<span style="font-family: "verdana" , sans-serif;">Eye Alignment/Binocular Potential (eye teaming)</span></div>
</li>
<li><div style="margin: 0px 0px 11px;">
<span style="font-family: "verdana" , sans-serif;">Visual Integration/Hand-Eye Coordination</span></div>
</li>
<li><div style="margin: 0px 0px 11px;">
<span style="font-family: "verdana" , sans-serif;">Eye Health</span></div>
</li>
</ul>
<span style="font-family: "verdana";">Be prepared to answer questions about your child's birth, health history and family history. During the eye exam you will be asked to hold your baby while the optometrist examines their eyes--be prepared to participate in activities or games that help the optometrist get a thorough look at your baby's vision skills.</span><br />
<span style="font-family: "verdana";"><br /></span>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEimbr632-zCiolFiv5qRgoKfUw-e5s949xP8rNA0mT8oyumm6xEoG71YzprvdIa6_kX9TzNFTD2Cjm83mm4Ff9w0a230xpholpXQTce4nAETPLOWvX1bl9mJjG0u8Aq2BXjrdC2OI9rJLQ/s1600/visit.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="347" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEimbr632-zCiolFiv5qRgoKfUw-e5s949xP8rNA0mT8oyumm6xEoG71YzprvdIa6_kX9TzNFTD2Cjm83mm4Ff9w0a230xpholpXQTce4nAETPLOWvX1bl9mJjG0u8Aq2BXjrdC2OI9rJLQ/s400/visit.jpg" width="400" /></a></div>
<span style="font-family: "verdana";"></span><br />
<h3>
Vision Skills Your Baby Is Developing</h3>
<div>
</div>
<div style="margin: 0px 0px 11px;">
<span style="font-family: "verdana" , sans-serif;">In the first six months, infant eyes are <a href="http://www.aoa.org/patients-and-public/good-vision-throughout-life/childrens-vision/infant-vision-birth-to-24-months-of-age?sso=y">developing</a> the ability to:</span></div>
<ul>
<li><div style="margin: 0px 0px 11px;">
<span style="font-family: "verdana" , sans-serif;">work together</span></div>
</li>
<li><div style="margin: 0px 0px 11px;">
<span style="font-family: "verdana" , sans-serif;">focus clearly at different distances quickly, accurately, and for sustained periods of time</span></div>
</li>
<li><div style="margin: 0px 0px 11px;">
<span style="font-family: "verdana" , sans-serif;">smoothly follow moving objects and to move accurately from one object to another.</span></div>
</li>
</ul>
<div>
</div>
<h4 style="margin: 0px 0px 11px;">
<span style="font-family: "trebuchet ms" , sans-serif;">At Birth:</span></h4>
<div>
</div>
<ul>
<li><div style="margin: 0px 0px 11px;">
<span style="font-family: "verdana" , sans-serif;">your baby sees only in black and white and shades of gray</span></div>
</li>
<li><div style="margin: 0px 0px 11px;">
<span style="font-family: "verdana" , sans-serif;">a newborn infant's eyes don't yet have the ability to accommodate or focus on near objects</span></div>
</li>
</ul>
<div>
</div>
<h4 style="margin: 0px 0px 11px;">
<span style="font-family: "trebuchet ms" , sans-serif;">During the First Month:</span></h4>
<div>
</div>
<ul>
<li><div style="margin: 0px 0px 11px;">
<span style="font-family: "verdana" , sans-serif;">one week after birth, they can see red, orange, yellow and green</span></div>
</li>
<li><div style="margin: 0px 0px 11px;">
<span style="font-family: "verdana" , sans-serif;">it takes a little longer for them to be able to see blue and violet</span></div>
</li>
<li><div style="margin: 0px 0px 11px;">
<span style="font-family: "verdana" , sans-serif;">it is normal for your baby's eyes to sometimes appear to not be working together as a team yet. For example, one eye may occasionally drift inward or outward from proper alignment</span></div>
</li>
</ul>
<div>
</div>
<h4>
<span style="font-family: "trebuchet ms" , sans-serif;">At 2-3 Months:</span></h4>
<div>
<ul>
<li><div style="margin: 0px 0px 11px;">
<span style="font-family: "verdana" , sans-serif;">develop sharper</span><span style="color: black; font-family: "verdana" , sans-serif;"> </span><span style="color: black; font-family: "verdana" , sans-serif;">visual acuity</span><span style="font-family: "verdana" , sans-serif;"> during this period, and their eyes are beginning to move better as a team </span></div>
</li>
<li><div style="margin: 0px 0px 11px;">
<span style="font-family: "verdana" , sans-serif;">learning how to shift their gaze from one object to another without having to move their head</span><span style="font-family: "calibri";"> </span></div>
</li>
</ul>
</div>
<div>
</div>
<h4 style="margin: 0px 0px 11px;">
<span style="font-family: "trebuchet ms" , sans-serif;">4-6 months:</span></h4>
<div>
</div>
<ul>
<li><div style="margin: 0px 0px 11px;">
<span style="font-family: "verdana" , sans-serif;">see more distinctly and are developing depth perception </span></div>
</li>
<li><div style="margin: 0px 0px 11px;">
<span style="font-family: "verdana" , sans-serif;">move their eyes quicker and more accurately to follow moving objects</span></div>
</li>
</ul>
<ul>
<li><div style="margin: 0px 0px 11px;">
<span style="font-family: "verdana" , sans-serif;">Visual acuity improves from about 20/400 at birth to approximately 20/25 at 6 months of age </span></div>
</li>
<li><div style="margin: 0px 0px 11px;">
<span style="font-family: "verdana" , sans-serif;">Color vision should be similar to that of an adult by six months</span></div>
</li>
</ul>
<div>
</div>
<div>
<span style="font-family: "trebuchet ms";">
</span></div>
<h4 style="margin: 0px 0px 11px;">
<span style="font-family: "trebuchet ms" , sans-serif;">7-12 months:</span></h4>
<ul>
<li><div style="margin: 0px 0px 11px;">
<span style="font-family: "verdana" , sans-serif;">infants become mobile and begin learning how to coordinate their vision with their body movements</span></div>
</li>
</ul>
<ul>
<li><div style="margin: 0px 0px 11px;">
<span style="font-family: "verdana" , sans-serif;">infant's eyes also begin to change color during this time</span></div>
</li>
</ul>
<div>
<span style="font-family: "trebuchet ms";">
</span></div>
<span style="font-family: "verdana" , sans-serif;">You can help your baby's vision development with simple <a href="http://www.infantsee.org/x3638.xml">games and activities</a>.</span><br />
<h3>
</h3>
<h3>
What to Watch for...</h3>
<div>
<span style="font-family: "verdana" , sans-serif;">
</span></div>
<h4 style="margin: 0px 0px 11px;">
<span style="font-family: "trebuchet ms" , sans-serif;">Eye alignment problems</span></h4>
<div style="margin: 0px 0px 11px;">
<span style="font-family: "verdana" , sans-serif;">It takes a few months for an
infant's eyes to develop eye teaming skills. However, if you feel one of your baby's
eyes is misaligned constantly or does not move in synch with the other eye,
contact your family doctor or optometrist as soon as possible.</span></div>
<div style="margin: 0px 0px 11px;">
<span style="font-family: "verdana";">Some terms you may hear from your Optometrist:</span></div>
<div style="margin: 0px 0px 11px;">
<span style="font-family: "verdana";"><a href="http://doctorsofoptometry.ca/amblyopia-lazy-eye/">Amblyopia</a> or lazy eye</span></div>
<div style="margin: 0px 0px 11px;">
<span style="font-family: "verdana";"><a href="http://doctorsofoptometry.ca/astigmatism/">Astigmatism</a> </span></div>
<div style="margin: 0px 0px 11px;">
<span style="font-family: "verdana";"><a href="http://doctorsofoptometry.ca/hyperopia-farsightedness/">Hyperopia</a> or farsightedness</span></div>
<div style="margin: 0px 0px 11px;">
<span style="font-family: "verdana";"><a href="http://doctorsofoptometry.ca/myopia-nearsightedness/">Myopia</a> or nearsightedness</span></div>
<div style="margin: 0px 0px 11px;">
<span style="font-family: "verdana";"><a href="http://doctorsofoptometry.ca/strabismus-crossed-eyes/">Strabismus</a> </span></div>
<span style="font-family: "verdana";"></span><br />
<div style="margin: 0px 0px 11px;">
</div>
<span style="font-family: "verdana";">
</span>
<h3 style="margin: 0px 0px 11px;">
Premature Infants</h3>
<div style="margin: 0px 0px 11px;">
<span style="font-family: "verdana" , sans-serif;">Premature babies have a greater risk of developing eye problems than full-term babies so it is extremely important for them to have a comprehensive eye exam at 6 months. Two of the main vision concerns with a premature baby are:</span></div>
<div style="margin: 0px 0px 11px;">
<span style="font-family: "verdana" , sans-serif;"><b>Retinopathy of prematurity (ROP):</b> the
abnormal replacement of normal tissue in the retina with fibrous tissue and
blood vessels. ROP can cause scarring of the retina, poor vision, </span><span style="color: black; font-family: "verdana" , sans-serif;">retinal detachment and even</span><span style="font-family: "verdana" , sans-serif;"> blindness. </span><span style="line-height: 107%; margin: 0px;"><span style="font-family: "verdana" , sans-serif;"><i>All premature babies are at risk of ROP</i>.</span></span></div>
<span style="line-height: 107%; margin: 0px;"><span style="font-family: "verdana";"></span></span><br />
<div style="margin: 0px 0px 11px;">
<span style="line-height: 107%; margin: 0px;"><span style="font-family: "verdana";"><span style="font-family: "verdana" , sans-serif;"><b>Nystagmus: </b>the</span><span style="font-family: "verdana" , sans-serif;"> involuntary, back-and-forth
movement of both eyes which usually </span><span style="font-family: "verdana" , sans-serif;">causes the eyes to drift slowly in one direction and then "jump" back
in the other direction. The eye movements are usually horizontal, but they can
be diagonal or rotational as well. It </span><span style="font-family: "calibri" , sans-serif; font-size: 11pt; line-height: 107%; margin: 0px;"><span style="font-family: "verdana" , sans-serif; font-size: small;">can be present at birth, or it may
develop weeks to months later.</span> </span></span></span></div>
<span style="line-height: 107%; margin: 0px;"><span style="font-family: "verdana";">
</span></span>
<div style="margin: 0px 0px 11px;">
<span style="line-height: 107%; margin: 0px;"><br /></span></div>
<span style="line-height: 107%; margin: 0px;">
<h3 style="margin: 0px 0px 11px;">
<span style="font-family: "trebuchet ms" , sans-serif;">To keep up to date with <span style="color: #3d85c6;">Protect Your Peepers</span> Activities and Events in the community please visit Monkey Crew Against D.I.P.G. on <a href="https://www.facebook.com/monkeycrewagainstDIPG/">Facebook</a> or our <a href="http://monkeycrewagainstdipg.com/">website</a>.</span></h3>
<h3 style="margin: 0px 0px 11px;">
<span style="font-family: "trebuchet ms" , sans-serif;"><br /></span></h3>
<h3 style="margin: 0px 0px 11px;">
<span style="font-family: "trebuchet ms" , sans-serif;">Resources:</span></h3>
<div style="margin: 0px 0px 11px;">
<span style="font-family: "verdana" , sans-serif;"><a href="http://www.allaboutvision.com/parents/infants.htm">All About Vision</a></span></div>
<div style="margin: 0px 0px 11px;">
<span style="font-family: "verdana";"><a href="http://www.infantsee.org/x3638.xml">InfantSEE</a></span></div>
<div style="margin: 0px 0px 11px;">
<span style="font-family: "verdana" , sans-serif;"><a href="http://doctorsofoptometry.ca/">Doctors of Optometry Canada</a></span></div>
<div style="margin: 0px 0px 11px;">
<span style="font-family: "verdana" , sans-serif;"><a href="http://www.aoa.org/patients-and-public/good-vision-throughout-life/childrens-vision/infant-vision-birth-to-24-months-of-age?sso=y">American Optometric Association</a></span></div>
</span><br />
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<b><span style="font-family: "trebuchet ms";"><br /></span></b></div>
<h4>
</h4>
<div>
<br /></div>
<b></b><i></i><u></u><sub></sub><sup></sup><strike></strike>Monkey Crew Against DIPGhttp://www.blogger.com/profile/02458808474318651223noreply@blogger.com0tag:blogger.com,1999:blog-1886341253112590105.post-67413185699125333292016-08-24T18:36:00.000-07:002016-09-27T15:53:58.491-07:00<h2>
<span style="font-family: "trebuchet ms" , sans-serif; font-size: large;"></span><u><span style="font-size: x-large;">Protect Your Peepers!</span></u></h2>
<h3>
<span style="font-size: large;">
Comprehensive Eye Care for Children</span></h3>
<div>
<span style="font-family: "verdana" , sans-serif;"><a href="https://drive.google.com/file/d/0B4EwDXGm1bRQUW9qWl8wX2p5V2s/view?usp=sharing"><b>Here is a PDF </b></a><i><a href="https://drive.google.com/file/d/0B4EwDXGm1bRQUW9qWl8wX2p5V2s/view?usp=sharing"><b>Protect Your Peepers</b></a></i><a href="https://drive.google.com/file/d/0B4EwDXGm1bRQUW9qWl8wX2p5V2s/view?usp=sharing"><b> Brochure to print</b></a></span></div>
<div>
<br /></div>
<span style="font-family: "verdana" , sans-serif;"><a href="http://monkeycrewagainstdipg.com/"><span style="font-size: large;">Monkey Crew Against D.I.P.G.</span></a><span style="font-size: large;"> has started the </span><i><span style="font-size: large;">Protect Your Peepers Campaign</span></i><span style="font-size: large;"> to encourage parents to seek quality, comprehensive eye care for their young children. An important part of our mandate is to provide parents and caregivers with accurate, credible information. As well as, guide them towards easily accessible resources that best support their children's health and well-being. </span><a href="http://www.braintumour.ca/5825/protect-your-peepers"><span style="font-size: large;">Brain Tumour Foundation of Canada</span></a><span style="font-size: large;"> has also come onboard with our </span><i><span style="font-size: large;">Protect Your Peepers Campaign</span></i><span style="font-size: large;"> for Childhood Cancer Awareness Month this September!</span></span><br />
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<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgqZZp8DPXF2kacwxNQAGg0JPbWds8rapdoFziWCnjyn9r3Om7hIXNvz_s1LR6v7uWGRrzt59e_uMVcwuuQH4RlO-83KVu-QgI2b0pkFlhjGHBMnpdN4RgZUXWj0prsB8xGjc1wu6Cp5dw/s1600/blog.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="280" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgqZZp8DPXF2kacwxNQAGg0JPbWds8rapdoFziWCnjyn9r3Om7hIXNvz_s1LR6v7uWGRrzt59e_uMVcwuuQH4RlO-83KVu-QgI2b0pkFlhjGHBMnpdN4RgZUXWj0prsB8xGjc1wu6Cp5dw/s400/blog.jpg" width="400" /></a></div>
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<br /></div>
<span style="font-family: "verdana" , sans-serif;"><span style="font-size: large;">A </span><a href="https://opto.ca/health-library/comprehensive-eye-exams-vital-for-more-than-just-your-vision"><span style="font-size: large;">Comprehensive Eye Exam</span></a><span style="font-size: large;"> conducted by a qualified Optometrist is a non-invasive method to detect ocular symptoms of health and sight issues. The goal</span></span><br />
<span style="font-family: "verdana" , sans-serif; font-size: large;">of this initiative is earlier detection of pediatric brain tumours, such as DIPG, in young children. However, it comes with the benefit of maintaining good overall eye health for your child.</span><span style="font-family: "verdana";"><br /></span><br />
<blockquote class="tr_bq">
<blockquote class="tr_bq">
<span style="color: #0b5394; font-size: large;">"A comprehensive eye exam ...can often be the first line of detection of a brain tumour" -Dr. Lee, DO, BSc</span></blockquote>
</blockquote>
<span style="font-family: "verdana" , sans-serif; font-size: large;"><br /></span>
<span style="font-family: "verdana" , sans-serif; font-size: large;"><b>Our hope is that with earlier detection of childhood brain tumours, we will:</b></span><br />
<ul>
<li><span style="font-family: "verdana"; font-size: large;">Increase survival rates with earlier intervention</span></li>
<li><span style="font-family: "verdana"; font-size: large;">Provide greater symptom-free survival times</span></li>
<li><span style="font-family: "verdana";"><span style="font-size: large;">Gain insight into the biology and etiology of childhood brain tumours </span><i><span style="font-size: large;">before</span></i><span style="font-size: large;"> they are in aggressive progression</span></span></li>
<li><span style="font-family: "verdana"; font-size: large;">Find viable treatment options that lead to a cure</span> </li>
</ul>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiDT4cXeX0v9200AqHLVBOC0p_s1v1crWPNgpKGp4lqdsvKdqVDeG6Rk9XlkHOncSld2dKOcutV1qaXOBX1h4FHZ2pfcXBbyhuJsWEcj1FEuZqNB3r2a-RNpBqVy9FnMDsGA1e1oiYTq4o/s1600/blog3.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiDT4cXeX0v9200AqHLVBOC0p_s1v1crWPNgpKGp4lqdsvKdqVDeG6Rk9XlkHOncSld2dKOcutV1qaXOBX1h4FHZ2pfcXBbyhuJsWEcj1FEuZqNB3r2a-RNpBqVy9FnMDsGA1e1oiYTq4o/s400/blog3.jpg" width="270" /></a></div>
<br />
<h2>
<span style="font-size: x-large;">
Comprehensive Eye Exams for Children</span></h2>
<h3>
<span style="font-size: large;">
Ensure Your Child Receives a Quality Eye Exam</span></h3>
<div>
<span style="font-family: "verdana" , sans-serif; font-size: large;">1.) Do Your Homework</span></div>
<ul>
<li><span style="font-family: "verdana"; font-size: large;">Check the Optometrist's qualifications</span></li>
<li><span style="font-family: "verdana"; font-size: large;">Check the clinic's reviews</span></li>
<li><span style="font-family: "verdana"; font-size: large;">Check the information the clinic provides on their website</span></li>
</ul>
<div>
<span style="font-family: "verdana"; font-size: large;">You can also use the doctor locator from the <a href="http://bc.doctorsofoptometry.ca/">BC Doctors of Optometry</a> website to find an optometrist in your area. </span></div>
<ul>
</ul>
<div>
<span style="font-family: "verdana" , sans-serif; font-size: large;">2.) Ask Questions</span></div>
<ul>
<li><span style="font-family: "verdana"; font-size: large;">Ask what a comprehensive pediatric eye exam includes at their clinic and compare it to our list below</span></li>
<li><span style="font-family: "verdana";"><span style="font-size: large;">Ask </span><i><span style="font-size: large;">ahead</span></i><span style="font-size: large;"> of time if pressure testing or other brain tumour detection tests are available for young children</span></span></li>
</ul>
<div>
<span style="font-family: "verdana";"><span style="font-size: large;">Young children do not need to know how to read to have an eye exam. The Optometrist will use the </span><a href="http://www.cps.ca/documents/position/children-vision-screening"><span style="font-size: large;">Tumbling E chart or Lea Symbol system</span></a><span style="font-size: large;"> (shapes) for the exam.</span></span></div>
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<span style="font-family: "verdana"; font-size: large;"><br /></span></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiJ2w_iU_1kBfyc9w9ZFEpckZM_WJ9TrzXla_3-v94ZtWw_4HbkVZYrLExV9xMYZVzBO73SD4VY4xdQUtH19qiMyCfYh-vjAG_fKgs7aBKz58kFEdwBxNdqYkNkuhQxwMizT4si6h7hLHw/s1600/eye+exams+blog.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="365" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiJ2w_iU_1kBfyc9w9ZFEpckZM_WJ9TrzXla_3-v94ZtWw_4HbkVZYrLExV9xMYZVzBO73SD4VY4xdQUtH19qiMyCfYh-vjAG_fKgs7aBKz58kFEdwBxNdqYkNkuhQxwMizT4si6h7hLHw/s400/eye+exams+blog.jpg" width="400" /></a></div>
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<span style="font-size: large;">Not All Eye Exams Are Comprehensive Eye Exams!</span></h3>
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<span style="font-family: "verdana" , sans-serif;"><span style="font-size: large;">It is important for parents to understand that </span><a href="https://opto.ca/sites/default/files/cao_position_statement_-_comprehensive_vision_examination_of_preschool_children.pdf"><span style="font-size: large;">vision screenings</span></a><span style="font-size: large;"> conducted at school and vision evaluations provided by the child's doctor are </span><i><span style="font-size: large;">NOT</span></i><span style="font-size: large;"> comprehensive eye exams and do </span><i><span style="font-size: large;">not</span></i><span style="font-size: large;"> adequately assess a child's overall eye health and visual abilities.</span></span></div>
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<blockquote class="tr_bq">
<span style="color: #0b5394; font-size: large;">"All children should receive a comprehensive eye and vision examination assessing and treating any deficiencies in ocular health..." -Canadian Association of Optometrists</span></blockquote>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjCLeQvQpdu1NWqKJ9Lp_1NTjGHVD9sTEIwE51u-UBi0v9t2yoRbcbeayamgoo_B-uRB7eBUwIej2EgOo-9iBFJ-RGSKf-7F4o2jhsg0inCoBaZ93SsCnsxNbowjAS1Yg4QBYUbzk0I4i0/s1600/peeper+chart+blog.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjCLeQvQpdu1NWqKJ9Lp_1NTjGHVD9sTEIwE51u-UBi0v9t2yoRbcbeayamgoo_B-uRB7eBUwIej2EgOo-9iBFJ-RGSKf-7F4o2jhsg0inCoBaZ93SsCnsxNbowjAS1Yg4QBYUbzk0I4i0/s640/peeper+chart+blog.jpg" width="492" /></a></div>
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<span style="font-size: x-large;">Warning Signs</span></h2>
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<span style="font-family: "trebuchet ms" , sans-serif; font-size: large;">Book a comprehensive eye exam if your child is suffering with <u>any</u> of the following symptoms:</span></h3>
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<li><span style="font-family: "verdana" , sans-serif; font-size: large;">Red, itchy or watering eyes</span></li>
<li><span style="font-family: "verdana" , sans-serif; font-size: large;">Sensitivity to light</span></li>
<li><span style="font-family: "verdana" , sans-serif; font-size: large;">An eye that consistently turns in or out</span></li>
<li><span style="font-family: "verdana"; font-size: large;">Tilting their head to see better</span></li>
<li><span style="font-family: "verdana"; font-size: large;">Squinting, rubbing the eyes, or excessive blinking</span></li>
<li><span style="font-family: "verdana"; font-size: large;">A lack of concentration</span></li>
<li><span style="font-family: "verdana"; font-size: large;">Covering or closing one eye</span></li>
<li><span style="font-family: "verdana"; font-size: large;">Irritability or short attention span</span></li>
<li><span style="font-family: "verdana"; font-size: large;">Holding objects too close</span></li>
<li><span style="font-family: "verdana"; font-size: large;">Avoiding activities that require near vision, such as reading or coloring, or distance vision, such as playing ball or tag</span></li>
<li><span style="font-family: "verdana"; font-size: large;">Visible frustration or grimacing</span></li>
<li><span style="font-family: "verdana"; font-size: large;">Complaining of headaches or tired eyes</span></li>
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<span style="font-family: "trebuchet ms" , sans-serif;"><span style="font-size: large;">Please follow Monkey Crew Against D.I.P.G. on </span><a href="https://www.facebook.com/monkeycrewagainstDIPG/"><span style="font-size: large;">Facebook</span></a><span style="font-size: large;"> to stay up to date on our Protect Your Peepers Campaign and Childhood Cancer Awareness Initiatives. For more information about D.I.P.G., the Monkey Crew and Sevanah's story visit <a href="http://monkeycrewagainstdipg.com/">Monkey Crew Against D.I.P.G.</a></span></span></h3>
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<span style="font-family: "trebuchet ms" , sans-serif; font-size: large;">For my fellow research enthusiasts:</span></h3>
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<span style="font-family: "verdana" , sans-serif; font-size: large;">Clinical research supports the theory that pediatric eye exams can be an effective, non-invasive tool to detect brain tumours in young children.</span></div>
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<a href="http://www.ncbi.nlm.nih.gov/m/pubmed/20137418/?i=17&from=ocular%20manifestations%20and%20brain%20tumours"><b><span style="color: #0563c1; font-family: "verdana" , sans-serif;">Ocular manifestations of brainstem tumor</span></b></a><br />
<b><span style="font-family: "verdana" , sans-serif;"><br /></span>
</b><a href="http://www.ncbi.nlm.nih.gov/m/pubmed/26180471/?i=2&from=ocular%20presentation%20of%20brain%20tumours"><b><span style="color: #0563c1; font-family: "verdana" , sans-serif;">Ophthalmic Features of Outpatient Children Diagnosed with Intracranial Space-Occupying Lesions by Ophthalmologists</span></b></a><br />
<b><span style="font-family: "verdana" , sans-serif;"><br /></span>
</b><a href="http://www.ncbi.nlm.nih.gov/m/pubmed/12015644/?i=16&from=ocular%20symptoms%20and%20paediatric%20brain%20tumours"><b><span style="color: #0563c1; font-family: "verdana" , sans-serif;">Eye findings in paediatric brain tumour - data basis for a follow-up proposal</span></b></a></div>
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<b><span style="font-family: "verdana" , sans-serif;"><br /></span>
</b><a href="http://www.ncbi.nlm.nih.gov/m/pubmed/26115193/?i=16&from=ophthalmologic%20signs%20of%20brain%20tumours"><b><span style="color: #0563c1; font-family: "verdana" , sans-serif;">Disrupting NOTCH Slows Diffuse Intrinsic Pontine Glioma Growth, Enhances Radiation Sensitivity, and Shows Combinatorial Efficacy With Bromodomain Inhibition</span></b></a></div>
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<b><span style="font-family: "verdana" , sans-serif;"><br /></span>
</b><a href="http://www.ncbi.nlm.nih.gov/m/pubmed/18661443/?i=22&from=ophthalmologic%20detection%20brain%20tumours"><b><span style="color: #0563c1; font-family: "verdana" , sans-serif;">Ophthalmological findings in pediatric brain neoplasms: 58 cases</span></b></a></div>
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<b><span style="font-family: "verdana" , sans-serif;"><br /></span>
</b><a href="http://www.ncbi.nlm.nih.gov/m/pubmed/24858153/?i=5&from=ophthalmologic%20detection%20brain%20tumours"><b><span style="color: #0563c1; font-family: "verdana" , sans-serif;">Evaluation of ophthalmic manifestations in patients with intracranial tumours</span></b></a></div>
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<a href="http://www.ncbi.nlm.nih.gov/m/pubmed/26444404/?i=1&from=ophthalmologic%20detection%20brain%20tumours"><b><span style="color: #0563c1; font-family: "verdana" , sans-serif;">The Effects of Primary Brain Tumors on Vision and Quality of Life in Pediatric Patients</span></b></a></div>
<b><span style="line-height: 107%;"><span style="font-family: "verdana" , sans-serif;"><br /></span>
</span></b><span style="line-height: 107%;"><a href="http://www.ncbi.nlm.nih.gov/m/pubmed/26043711/?i=2&from=ocular%20symptoms%20of%20brain%20stem%20gliomas"><b><span style="color: #0563c1; font-family: "verdana" , sans-serif;">Torticollis in children: an alert symptom not to be turned away</span></b></a><br />
<b><span style="font-family: "verdana" , sans-serif;"><br /></span>
</b><a href="https://www.vsp.com/brain-tumor.html"><b><span lang="EN" style="mso-ansi-language: EN;"><span style="color: #0563c1; font-family: "verdana" , sans-serif;">Eye Exam Leads to Life-Saving Diagnosis for Little Boy</span></span></b></a><br />
<span style="font-family: "verdana" , sans-serif;"><br /></span>
<a href="http://doctorsofoptometry.ca/detecting-underlying-health-conditions/"><b><span lang="EN" style="mso-ansi-language: EN;"><span style="color: #0563c1; font-family: "verdana" , sans-serif;">Doctors of Optometry Canada</span></span></b></a></span></div>
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<span style="font-family: "verdana";">Some encouraging stories:</span><br />
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<span style="font-family: Verdana, sans-serif;"><a href="http://www.dailymail.co.uk/health/article-3807481/Boy-15-diagnosed-deadly-brain-tumour-routine-eye-test-despite-mother-blaming-headaches-playing-video-games.html">Teenager whose mother believed his headaches were fromplaying too many computer games is diagnosed with a brain tumour after a tripto the opticians</a></span></div>
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<span style="font-family: Verdana, sans-serif;"><a href="http://www.yorkshirepost.co.uk/news/trip-to-the-optican-saves-life-of-girl-13-1-8126968">Trip to the optican saves life of girl, 13.</a></span></div>
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<span style="font-family: Verdana, sans-serif;"><a href="http://www.mirror.co.uk/news/uk-news/pregnant-mum-unborn-daughters-lives-8881273">Pregnant mum and unborn daughter's lives saved by opticianwho discovered 'exploding' brain tumour</a></span></div>
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<span style="font-family: Verdana, sans-serif;"><a href="http://www.walesonline.co.uk/news/health/student-went-optician-eye-test-11921424">This student went to his optician for an eye test – and theydiscovered a life-threatening brain tumour</a></span></div>
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<span style="font-family: Verdana, sans-serif;"><a href="http://www.express.co.uk/news/uk/713488/Richard-Brannan-eye-test-cancer">Dad who suffered 'migraines' saved as eye test spots CANCER</a></span><span style="font-family: Calibri;"> </span></div>
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<br />Monkey Crew Against DIPGhttp://www.blogger.com/profile/02458808474318651223noreply@blogger.com1